The Cause
NBIA is a degenerative neurological disorder, and due to a lack of funds one of the very few labs dedicated to researching this disease is at risk of closing its doors. Please help make a difference by contributing to our cause....
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The Bands
We still need more talented musicians and bands to get involved. The clock is ticking on NBIA research and we need your help. Make a difference by donating, attending concerts, or donating performance by YOUR band. Click below for more info ...
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Concerts
Find upcoming concert events near you. Proceeds from concert events will go toward our fundraising goal to keep the top research laboratory open....
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Featured Articles
What is NBIA? NBIA is a rare, genetic, progressive neurological disorder that affects approximately one to three people per million. The common feature among all individuals with NBIA is iron accumulation in the brain, along with a progressive movement disorder which can result in clumsiness, difficulty controlling the body and speech problems. Some individuals eventually lose the ability to... READMORE |
A Letter From the Leap Family Imagine waking up and not be able to walk, talk, or eat. Our 14 year old daughter Brittany faces these challenges every day. To make matters more difficult we are told that there is no treatment or cure. Worse yet, one of the very few labs dedicated to researching her disease is at risk of ... READMORE |
Hayflick Lab Faces Closure By Patricia WoodDr. Susan Hayflick – NBIA’s top researcher for the past 17 years – said she faces the prospect of closing her lab by the end of this year after being turned down twice in two years for funding by the National Institutes of Health. Hayflick said she hopes to avert a closure if funds ... READMORE |
Rockstar Bio In the music industry, certain groups of people get the nickname of “Rockstar”. In the NBIA family, I have the nickname “Rockstar” due to the fact I have continued to overcome odds and have come out in top. I have also made a lot of contacts with people in the music industry locally as well ... READMORE |
Donate via Facebook:
Mail-in Donations:
Please make checks payable to:
NBIA Disorders Association (memo: “Haylick Lab Campaign”) and mail to:
NBIA Disorders Association, 2082 Monaco Ct., El Cajon, CA 92019-4235
Donate via Paypal:
From the Fox family in Raleigh:
Through friend-of-a-friend networking, our local ABC affiliate TV station, WTVD, called us and came to our home to film a story about the Hayflick Lab funding drive. It aired recently on the 6pm news here in the Raleigh/Durham, NC area. So we wanted to share these things with you to hopefully spark some ideas in your region.
Fundraising Goal
$250000
$208977
84%
Updated:
4/29/10
4/29/10
